Time for a bit of an update on the blog and life in general.

The Blog

You may have noticed my Monday post schedule has gone out the window in the last few weeks.

Never fear!

I will be continuing to post weekly however I am changing up the day. From next week Wednesday will be the new weekly post day. It will be a special hump day treat to help you get through the week.

As for Friday Fast Five, I’m taking a break from it to make way for a new fortnightly series, Life Skills with Lilz.

I haven’t sorted out which day it will be posted yet but the first one will be up in the next couple of weeks so keep an eye out for it.

I’m working on getting better at posting more regularly on Instagram . It’s definitely a work in progress. I really just need to remember to take photos more often.

As always I welcome your comments and feedback on posts, especially on the upcoming Life skills with  Lilz. Everyone does things a little differently so you feedback is a great way for me to learn other ways of doing things. It helps me to grow.

Life

Life seems to be getting busier by the day. Not sure if its just because the older I get the faster time seems to pass or because I have made more friends in the last few years and so my social calendar is quickly filling. Perhaps its that I’m in my last year as a Rover Scout and so I’m trying to fit in as much as I can before my boot while I also try to step up in my roles as a Joey Scout leader.

B is also getting busier too as he has just stepped in to a national role in scouting. This has certainly made it a challenge for us to spend much time together on weekends as most of them either one or both of us have something on. Between my schedule and B’s my calendar is a riot of colour coding but that doesn’t faze me so much as it’s a good excuse to buy more stationary.

I’ve got some challenges for myself this year from running a Rover event to stepping into some new roles in both my work and hobbies. I’m looking forward to putting my best into all of these things this year as, as a life long scout, I enjoy challenging myself as a way to grow and develop myself as a person.

So overall 2016 is looking to be a challenging and busy year but I’m looking forward to it. And though I may not always post on time or post what I planned I’ll always try to take the time to write a post each week even if it is just to let you know what’s new with me.

Thanks for sticking with me

See you next week

Lil

I apologies for the lateness of the post this week. Unfortunately the need for sleep and a busy schedule has won out and while I have been working on this post for a few days I have only just finished it. I will (as always) try to do better next week.

Things don’t always go as planned but I’ve learned to just roll with it.

Anyway on to this weeks post:

Me – On Being an Adult

A little earlier this year, not long before my birthday, I realised something. I actually felt like an adult. That’s not something I had felt before.

Sure I have been technically an adult for a number of years now but it never really felt like I was old enough to have that sort of responsibility. I’ve always just felt a like I wasn’t yet a grown up.

But that has changed. I’m not sure what’s triggered it but I now consider myself and adult. Is it maybe just that I’ve figured out that being an adult doesn’t mean having your life sorted or having all the  answers. It may be because I recently got my first loan and am now in debt. It may even be because I find myself getting increasing frustrated with young adults who want to be treated like adult but don’t want to act like them. I’ve no Idea but its nice to finally feel like I made it.

And while I haven’t felt particularly adulty in the first part of my adulthood I seem to have been well prepared for it thanks to my wonderful parents. But I find that many of my peers and many of the new adults out there are not. Or at least they don’t feel that they are.

And so it is that this year I am endeavouring to help educate some of the young adults in my community on some of the life skills they will need going into the future. Things they weren’t taught at school (or they have forgotten), Things they weren’t taught at home (or refused to learn) or they just didn’t know they needed to know.

Things like how to budget for moving out of home, how to make some easy and cheap meals, how to do laundry, how to do some basic mends on cloths, where to go for more advice on things I can’t teach them (like taxes) and the really essential stuff like how to put together a balanced fivsies plate.

And I’m hoping to share some (if not all) of these topics here to.

Of course if you have any specific suggestions of things you don’t know (or didn’t know as a young adult) that you wish someone had taught you please let me know so I can try and work them in to a future post.

Lil

Disclaimer: this is just my own thoughts and understanding of my illness. Each person has different experiences and I may not be right about some of the medical information as it is just my understanding of it all.


I have often been asked what it is like having Cystic Fibrosis (CF). The main problem with this question is I don’t know what life is like without it.

Today though I’m going to try and answer this question as best I can.

For starters I’m probably not the best example of a ‘typical’ CF patient. I’m actually (Luckily) reasonably healthy.

That doesn’t mean it doesn’t effect my life.

CF is kind of like having a chest cold.

All the time.

Sometimes I wake up feeling like someone poured cement into the bottom of  my lungs overnight. My lungs feel heavy like a weight I’m carrying around.  While like most people I don’t have to think about breathing it’s definitely something I notice.

Real colds roll into chest infections and chest infections lead to more cement feeling, more coughing, more fatigue and more of a likelihood of ending up in hospital.

Fortunately I seem to get away with around one hospitalisation a year these days but that wasn’t always the case. The combination of teenage hormones and school stress meant I spent almost  quarter of my last two years of school in hospital.

I’ve meet many people in life who haven’t been to hospital since birth or at worse have only gone for broken bones but to me hospital is almost like a second home. While this is mostly attributed to the numerous hospitalisations over the years it also stems from the many outpatient appointments I also attend. Regular check up clinics, vitamin B injections, many different blood tests, chest X-rays, bone mineral density scans, physio appointments and so on.

But It’s not all about my lungs.  I can’t digest nutrients properly either. CF’s have a ‘high fat, high salt, high sugar’ diet and while this can be viewed as  an up side you have to understand the reasoning behind it to understand what we go through. Firstly high salt. The overall problem of CF is a salt issue. As part of that CF’s lose a lot more of their salts then most people do. If you were to lick my arm on a salty day it would taste like you were liking up salt. So the high salt is to help keep our electrolytes in order.

Secondly, high fat. CF’s with a pancreatic deficiently (like myself) don’t naturally produce the enzymes needed to absorb a lot of important nutrients like fats and vitamins. While we do have medications that help with this we still absorb a lot less then a regular person would . Its important for CF’s to keep up their fat stores so they have the extra fuel necessary to help with fighting off infections. So as we cant absorb as much from the same amount of fats we have to eat more to make up the difference. Unlike most western women I’ve grown up being told that I need to Put/keep weight on not lose it.

Thirdly, high sugar. We have to eat extra fats to build up our stores so its counter productive to then use up those stores for the everyday running of our bodies systems. This is where the sugar comes in. With a higher/more constant sugar intake it means our bodies are using the sugar energy (which is the bodies preferred energy source as its easier to use) rather than constantly breaking up our hard earned fat stores.

So while yes I can (and do) eat whatever I want and not feel guilty about it there are consequences for me if I don’t keep it up.

Of course there are also consequences to eating so much junk food as well but as a doctor apparently once said in a question about these consequences ‘at least they’ll live long enough to be effected by it’.

I’m sure there is much more I could say about it but that’s all I’m going to write about it for now.  If you have any specific questions I’m happy to answer them and I may even do another post expanding on this another day.

For now thanks for reading a little more about me.

This is the first in a series of posts about me.

This month we’re starting with the basics and other months will go more in depth on various aspect of my life.

Me.

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I’m Lil

I’m 24 and I live with my partner B in sunny Qld.

I have Cystic Fibrosis and earlier this year I contracted Guillain–Barré syndrome which I am fortunately recovering from really well.

I’m a self professed nerd and proud of it. Mostly I love reading, Harry Potter, Doctor Who and Disney. I also just really enjoy learning.

I’m a Rover Scout. I’ve been in the scouting movement since I was 8 and I’m now also a leader.

I love to cook. Cooking is my happy place. I love feeding people. I love the warm feeling I get when people enjoy the food I’ve made for them. I also love eating.

I like to make stuff. I knit, crochet, sew and do paper craft. I love stationery. I have more yarn than I know what to do with it. I have a rather large fabric collection too.

I love spending time with my family (immediate and extended). I have one of those supposedly weird families that generally gets along. My sister is my best friend.

So that’s a little overview of me.

Through the months you will get to know me a little better.